NDCS publications ‘highly commended’ by British Medical Association

11 September 2008

The British Medical Association (BMA) awarded the National Deaf Children’s Society (NDCS) with a high commendation for two of its information booklets, Down’s Syndrome and Childhood Deafness and Congenital cytomegalovirus and deafness, at the 2008 Patient Information Awards on Tuesday 9 September.  

 

Down’s Syndrome and Childhood Deafness was published by NDCS in partnership with The Down’s Syndrome Medical Interest Group (UK) and The Down’s Syndrome Association. The free booklet provides vital support to families of children with Down’s syndrome who are also deaf. 70 per cent of children with Down’s syndrome have a conductive deafness.

Congenital cytomegalovirus (CMV) and Deafness provides information for families and professionals about congenital CMV which can cause deafness in children who are otherwise well. CMV is the most common infection passed from a mother to an unborn baby. In the UK it affects about one baby in every 200 born.

Ruth Wallace, NDCS Head of Information and Publications, says:This award assures families and professionals will receive a high standard of information and support whenever they contact NDCS for information on Down’s syndrome and deafness and CMV. We have worked in partnership with a number of organisations and experts to ensure these are the best resources available. In particular, we would like to thank Mr Patrick Sheehan, Consultant Paediatric Otolaryngologist, The ENT and Hearing Clinic for Children with Down’s syndrome, Manchester Children’s Hospitals and Dr Simone Walter, SpR Audiological Medicine, Great Ormond Street Hospital for their vital input.

Both booklets will provide families with the information that they need, from identifying deafness, through to establishing effective communication skills.”

The Down's Syndrome Association is the lead voluntary sector organisation providing information and support to people with Down's syndrome, their families and the professionals who work with them. Contact 0845 2300 372, email info@downs-syndrome.org,uk or visit the website www.downs-syndrome.org.uk

The NDCS is the only UK charity solely dedicated to the support of deaf children and young people, their families, and professionals working with them. Parents with concerns about their child’s hearing can contact the NDCS Freephone Helpline on 0808 800 8880 (voice and text) or email helpline@ndcs.org.uk open 10am – 5pm Monday to Friday, or access the website at www.ndcs.org.uk