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Mild to moderate hearing loss

Discussion
Posted by sarahbetsy
05/02/21 12:41 PM

My daughter has mild to moderate hearing loss and has had hearing aids in both ears since she was 3momths old she will be one the end of Feb. We have been going with the flow and muddling through. 

now my concern is she still hasn't had it investigated why she has hearing loss. (No one in my family has this) 

I have a mri scan booked but has been cancelled twice and a blood test for her booked for March. I have no idea what they are looking for. could some one maybe exsplain from exsperance please. I've read other posts and see abbreviations of what have been diagnosed but I have no clue what these are.

thanks in advance.  


Discussion
Posted by embob
13/02/21 11:28 PM

Hi huni

it seems you've been in the same position as me with covid halting everything. My baby boy managed to have his mri just a week before lockdown and we just got the results via a zoom call with the paediatrician that sent him for it. As I understand it they are looking at the nerve connections to the brain, as if they're present or have any abnormalities. I think this plays a part in whether or not a child is suitable for implants if they're needed. It turned out my little boy has his nerves present and working but has the problem in his cochlea. An mri will also show the structures and highlight any concerns as well as ease any potential worries. 

my little one has hearing aids also, he's one now and he's doing ok. We was offered genetic testing as were the same as you with deafness being new to us and we said yes to it. COVID has halted this so it's just a waiting game really. 

I don't know your area but our area has a wonderful audiology team that we're able to phone and I have rung the ndcs helpline a lot of times with questions so if you're really worried I'm sure they will anytime hun. Likewise I have found great comfort and knowledge building through the ndcs workshops online particularly the newly diagnosed one and helpful tips for...... so if you don't already, check them out. 

apart from that I wish you all the best. x 

Discussion
Posted by embob
13/02/21 11:35 PM

Hi huni

it seems you've been in the same position as me with covid halting everything. My baby boy managed to have his mri just a week before lockdown and we just got the results via a zoom call with the paediatrician that sent him for it. As I understand it they are looking at the nerve connections to the brain, as if they're present or have any abnormalities. I think this plays a part in whether or not a child is suitable for implants if they're needed. It turned out my little boy has his nerves present and working but has the problem in his cochlea. An mri will also show the structures and highlight any concerns as well as ease any potential worries. 

my little one has hearing aids also, he's one now and he's doing ok. We was offered genetic testing as were the same as you with deafness being new to us and we said yes to it. COVID has halted this so it's just a waiting game really. 

I don't know your area but our area has a wonderful audiology team that we're able to phone and I have rung the ndcs helpline a lot of times with questions so if you're really worried I'm sure they will anytime hun. Likewise I have found great comfort and knowledge building through the ndcs workshops online particularly the newly diagnosed one and helpful tips for...... so if you don't already, check them out. 

apart from that I wish you all the best. x 

Discussion
Posted by embob
13/02/21 11:37 PM

Oh ps the blood tests we had were to rule out certain problems. I can’t remember all the terminology but when baby was diagnosed we got referred straight away to a paediatrician. When we met with her she asked us a multitude of questions about the pregnancy and family tree and history and as I understand it the blood tests were to rule out certain things that cause deafness such as infection in pregnancy. We then had bloods took for the genetic testing side of things but then were at a loss because COVID has halted things.

I’m not at all saying your babies bloods has been for the same reasons I’m just explaining what ours was for at that age and time frame. It may be that yours are different but your paediatrician or audiology team or even your designated gp should be able to help pinpoint what’s being looked for, as all information will be sent to your go so maybe it’s worth a call huni.

Take care x