Additional and complex needs
NDCS has a number of resources and events that are suitable for parents of deaf children with additional needs.
- Activities and events for children with additional needs
- Contact other families
- Attend an NDCS event
- View our publications
- Disability grants for parents and carers of disabled children
- Early Years Support - Developmental Journals
- Research findings
- Does your deaf child have Down's Syndrome?
- Technology Can Help!
- Transition Information Network
- Key Working
- Does your child have autism as well as deafness?
- Disabled Access
- Changes to the special educational needs system
- Communicating with your child
Activities and events for children with additional needs
Take a look at the Specialist providers - activities for children with additional needs for details of organisations that deliver events and activities for children with additional needs. Find out how our Inclusive Activities Team can support through our Me2 deaf-friendly activities programme to make sure your child's communication needs are met.
We have a factsheet to support organisations providing leisure activities to deaf children with additional needs.
Contact other families
You’re not alone. Getting in touch with other families via our online Parent Place discussion forum, local groups or Facebook group can be a wonderful source of ideas, inspiration and friendship.
- Parent Place This is our online forum where we have a dedicated discussion board for parents of deaf children with additional needs..
- Facebook We have a Page which you can join up to if you have a Facebook account. You can receive updates on what's going on, share photos and discuss issues with other users.
- Local groups Find out about your nearest local group and how to get involved here.
Attend an NDCS event
We can accept children who need basic personal care and/or require low level behavioural support on all NDCS youth events. We can then provide a higher level of support in relation to intimate personal care on our regulated events. Please read the attached FAQs to see if we can accept your child. If you are still unsure after reading the FAQ, please contact the events team on 0121 234 9832 or email firstname.lastname@example.org.
There are also a range of family events which are suitable for families of children with additional needs, although we do recommend you contact us to discuss suitability of the programme content before booking.
Please don't hesitate to contact us if you have any questions.
View our publications
We have a number of publications that are suitable for parents of deaf children with additional needs.
The titles below are available to download or order here or can be ordered by contacting the Freephone Helpline on 0808 800 8880.
* Please note to download or order publications you will need to be a member of NDCS.
Our key booklet Deaf children with additional needs includes sections on the following key areas:
- understanding additional needs
- professionals you may meet
- getting a diagnosis
- hearing aids
- parenting tips
- choices for your child
- your child’s emotions
- time for yourself
- support from others
- useful resources
Other publications of interest include:
Disability grants for parents and carers of disabled children
There are charities and trusts that provide funding towards the high cost of disability equipment, holidays, housing, days out, and anything above and beyond the normal costs of everyday living. But searching for funds yourself can be time-consuming.
The Disability Grants website can help you, your family or anyone you're supporting with a disability, to find extra funding.
Discover what’s available nationally and in your local area by visiting their website.
Early Years Support - Developmental Journals
The Early Years Development Journals are designed to help families, teachers and other practitioners better support development especially where children or young people have special educational needs and disabilities.
The Journals are easy-to-use tools to help with observing, recording and celebrating progress, and to identify areas where extra help and support may be needed. All the Journals are guided by the ethos of Early Support, and aim to empower families and put them at the heart of decision-making, supported by a co-ordinated keyworking approach. Developmental Journals are available for:
- Deaf children and babies
- Multiple needs
- Downs Syndrome
- Visual impairment.
Did you know that in 2010 the University of Manchester completed some research, funded by NDCS, into the experiences of services for families with a deaf child with additional complex needs?
Does your deaf child have Down's Syndrome?
Visit our webpage Down's syndrome and childhood deafness for information about how hearing loss can affect children with Down's syndrome.
Recent research has been conducted into early hearing loss and language abilities in children with Downs Syndrome. To find out more and read a summary of this research download the document below.
Technology Can Help!
We provide information about products and technology that may help children with additional needs.
We also have a range of products that you and your child can try out for free in your own home to help you decide whether or not they might be suitable . Check out our technology pages where you will also find information about the new iPad APPlicator which is a switch interface making access to apps easier for those with hand/eye coordination difficulties.
Transition Information Network
The transition to adulthood can be very daunting for everyone. If your child has additional needs, this can be a very anxious time for you all.
The Transition network has some useful information and resources and is worth checking out.
Do you want to find out more about what key working is all about? The National Children’s Bureau has written a Guide to help parents and professionals know more.
Does your child have autism as well as deafness?
We have been working with the National Autistic Society to improve information for parents on both conditions. Read the article written by us for the National Autistic Society’s members magazine reproduced here with the permission of the National Autistic Society. The Spring 2014 edition of our NDCS Families Magazine also has an ‘Ask the Expert’ column with information on Autism and hearing difficulties.
Euans guide provides information about accessibility to a range of venues across the UK. Reviews are written by disabled people and their families and new reviewers are always welcome!
The Max card provides children with complex needs and their families discounted entry to attractions throughout the United Kingdom.
Changes to the special educational needs system
Find out more about the changes to the special educational needs system that came into force in England in September 2014.
Communicating with your child
Find out about the Communication approaches or methods available to deaf children and their families.
Information on alternative methods of communication for children with no speech is also available from the charity Communication Matters.
Watch our YouTube playlist
Have a look at our list of videos for parents of deaf children with additional needs. Parents tell us about their experiences with deafblindness, autism and many other additional needs.
See the full list of videos on our YouTube channel.
We also have a video for staff in special schools. It offers five top tips to help them support a deaf child in their class.