Additional and complex needs
NDCS has a number of resources and events that are suitable for parents of deaf children with additional needs.
- Activities and events for children with additional needs
- Contact other families
- Attend an NDCS event
- View our publications
- Disability grants for parents and carers of disabled children
- Early Years Support - Developmental Journals
- What are you feeling (for deaf children with learning difficulties)
- Research findings
- Does your deaf child have Downs Syndrome?
- Technology Can Help!
- Transition Information Network
- Key Working
- Does your child have autism as well as deafness?
- Disabled Access
- Changes to the special educational needs system
- Communicating with your child
- Do you or your child have Usher, CHARGE, Alström, Bardet-Biedl, Wolfram, or Stickler syndrome? Do you live in England?
Activities and events for children with additional needs
Take a look at the Specialist providers - activities for children with additional needs for details of organisations that deliver events and activities for children with additional needs. Find out how our Inclusive Activities Team can support through our Me2 deaf-friendly activities programme to make sure your child's communication needs are met.
Contact other families
You’re not alone. Getting in touch with other families via our online Parent Place discussion forum, local groups or Facebook group can be a wonderful source of ideas, inspiration and friendship.
- Parent Place This is our online forum where we have a dedicated discussion board for parents of deaf children with additional needs..
- Facebook We have a Page which you can join up to if you have a Facebook account. You can receive updates on what's going on, share photos and discuss issues with other users.
- Local groups Find out about your nearest local group and how to get involved here.
Attend an NDCS event
There are a range of family events, including some with an emphasis on additional needs. Please don't hesitate to contact us if you have any questions.
View our publications
NDCS has a number of publications that are suitable for parents of deaf children with additional needs.
The titles below are available to download or order here or can be ordered by contacting the Freephone Helpline on 0808 800 8880.
* Please note to download or order publications you will need to be a member of NDCS.
Our key booklet Deaf children with additional needs includes sections on the following key areas:
- understanding additional needs
- professionals you may meet
- getting a diagnosis
- hearing aids
- parenting tips
- choices for your child
- your child’s emotions
- time for yourself
- support from others
- useful resources
Other publications of interest include:
Disability grants for parents and carers of disabled children
There are charities and trusts that provide funding towards the high cost of disability equipment, holidays, housing, days out, and anything above and beyond the normal costs of everyday living. But searching for funds yourself can be time-consuming.
The Disability Grants website can help you, your family or anyone you're supporting with a disability, to find extra funding.
Discover what’s available nationally and in your local area by visiting their website.
Early Years Support - Developmental Journals
The Early Support Developmental Journals are designed to help families, teachers and other practitioners better support development especially where children or young people have special educational needs and disabilities.
The Journals are easy-to-use tools to help with observing, recording and celebrating progress, and to identify areas where extra help and support may be needed. All the Journals are guided by the ethos of Early Support, and aim to empower families and put them at the heart of decision-making, supported by a co-ordinated keyworking approach. Developmental Journals are available for:
- Deaf children and babies
- Multiple needs
- Downs Syndrome
- Visual impairment
Click here http://www.councilfordisabledchildren.org.uk/what-we-do/networks-campaigning/early-support/resources/developmental-journals/developmental-journal-for-children-and-young-people-with-multiple-needs
What are you feeling (for deaf children with learning difficulties)
Deaf children and young people are likely to have difficulty finding a way to identify and describe their feelings or emotions. This is even more difficult for a deaf young person who also has a learning difficulty.
We hope that this booklet will help deaf children with learning difficulties find a way to manage their feelings safely. It is in two parts due to the size of the document. To download it click on the links below.
Let us know what you thought of this publication through our online feedback form.
Did you know that in 2010 the University of Manchester completed some research, funded by NDCS, into the experiences of services for families with a deaf child with additional complex needs?
Does your deaf child have Downs Syndrome?
Recent research has been conducted into early hearing loss and language abilities in children with Downs Syndrome. To find out more and read a summary of this research
Technology Can Help!
We provide information about products and technology that may help children with additional needs.
We also have a range of products that you and your child can try out for free in your own home to help you decide whether or not they might be suitable . Check out our technology pages where you will also find information about the new iPad APPlicator which is a switch interface making access to apps easier for those with hand/eye coordination difficulties.
Transition Information Network
The transition to adulthood can be very daunting for everyone. If your child has additional needs, this can be a very anxious time for you all.
The Transition Network has some useful information and resources and is worth checking out. For further information visit the website:
Do you want to find out more about what key working is all about? The National Children’s Bureau has written a guide to help parents and professionals know more. For further information, please visit the website here.
Does your child have autism as well as deafness?
We have been working with the National Autistic Society to improve information for parents on both conditions. Read the article written by us for the National Autistic Society’s members magazine reproduced here with the permission of the National Autistic Society. The Spring 2014 edition of our Families magazine also has an ‘Ask the Expert’ column with information on Autism and hearing difficulties.
Euan’s guide provides information about accessibility to a range of
venues across the UK. Reviews are written by disabled people and their
families and new reviewers are always welcome! To get involved or to
just read what others have written check out Euan's website.
The Max Card provides children with complex needs and their families discounted entry to attractions throughout the United Kingdom. More information.
Changes to the special educational needs system
Find out more about the changes to the special educaitonal needs system that came into force in England in September 2014.
Communicating with your child
The children’s communication charity I CAN together with the Communication Trust have re-launched the Talking Point website which provides information on children’s communication. More information..
Information on alternative methods of communication for children with no speech is available at Other Ways of Speaking which also provides links and useful information on other resources and organisations.
Do you or your child have Usher, CHARGE, Alström, Bardet-Biedl, Wolfram, or Stickler syndrome? Do you live in England?
Researchers at the University of Birmingham are doing a project about the experiences – good and bad - of specialist clinics for deafblind people with rare syndromes.They would like to talk to children (and their parents if under 16s) and adults who have these syndromes.
They would also like to hear from the parents/carers of people who have one of these syndromes but are unable to give their own permission (consent) to take part in the research. People must know that they have the syndrome – it must not be a secret. For example, if they have CHARGE this must be something you would talk about when they are there, though they may not understand about the syndrome. Those who take part will receive a £20 voucher. This project is funded by Sense.
If you would like some more information please email Liz Ellis firstname.lastname@example.org, telephone 0121 414 4392, or text 07745 244597.
Watch our YouTube playlist
Have a look at our list of videos for parents of deaf children with additional needs. Parents tell us about their experiences with deafblindness, autism and many other additional needs.
See the full list of videos on our YouTube channel.