Additional and complex needs
NDCS has a number of resources and events that are suitable for parents of deaf children with additional needs.
- Contact other families
- Attend an event
- View our publications
- Watch our videos
- The 'Big' Weekend
- What are you feeling (for deaf children with learning difficulties)
- 2010 research findings
- First ever event for young people with Usher Syndrome
- Papworth Trust – Kerry Farm
- Technology Can Help!
- Transition Information Network
- Key Working
- BSL Interpreted performance of ‘The Boy who sat on the Dragon Throne’
Contact other families
You’re not alone. Getting in touch with other families via our online Parent Place discussion forum, local groups or Facebook group can be a wonderful source of ideas, inspiration and friendship.
- Parent Place This is our online forum where we have a dedicated discussion board for parents of deaf children with additional needs at www.ndcs.org.uk/additional
- Facebook We have an NDCS Group and Page which you can join up to if you have a Facebook account. You can receive updates on what's going on, share photos and discuss issues with other users.
- Local groups Find out about your nearest local group and how to get involved here.
Attend an event
We run a number of events for families and young people which you can attend. They are a great way to access support and meet other people.
There are a range of family events, including some with an emphasis on additional needs and you are welcome to attend any you wish. Please don't hesitate to contact us if you have any questions.
View our publications
NDCS has a number of publications that are suitable for parents of deaf children with additional needs.
The titles below are available to download or order here or can be ordered by contacting the Freephone Helpline on 0808 800 8880.
* Please note to download or order publications you will need to be a member of NDCS.
Our key booklet Deaf children with additional needs includes sections on the following key areas:
- understanding additional needs
- professionals you may meet
- getting a diagnosis
- hearing aids
- parenting tips
- choices for your child
- your child’s emotions
- time for yourself
- support from others
- useful resources
Other publications of interest include:
Watch our videos
My child is deaf and blind
Parents Kevin and Jane tell us about life with their deafblind son Gethin, including why they have taken up rock climbing!
How to videos
Create a sensory experience for your child at home with our how to videos. Find out how to make sensory playing areas, toys, sounds and stories.
Watch the first video in the series above or see all the videos in the playlist on our YouTube channel.
What do you think of our videos? Let us know your thoughts in our one minute survey.
The 'Big' Weekend
In March 2011 NDCS piloted a new kind of weekend for families with deaf children with additional complex needs. Further weekends took place in March 2012 and 2013 and we are now planning our event for 2014.
We brought together families from across England, Wales and Scotland to spend a relaxing and informative few days in the company of other families who all have one thing in common – a child who has complex needs alongside a hearing loss.
The weekends have been led by experienced NDCS staff and invited specialists and discussions included a range of topics which parents have told us are important to them and they would like more information about.
All of the siblings took part in a range of activities and workshops and created a magazine about what they liked about the weekend.
Deaf children and young people themselves took part in fun and challenging activities including sports, arts, music and cooking.
We’ve brought together some of the presentations given during the weekends - download them below:
- 'Claiming and challenging decisions' presentation
- 'Cochlear Implants' presentation
- 'Massage for children with special needs' presentation
If you would like to find out more about the weekends either:
Visit our Frequently asked questions
Contact us Complexneedsfamilyweekend@ndcs.org.uk
What are you feeling (for deaf children with learning difficulties)
Deaf children and young people are likely to have difficulty finding a way to identify and describe their feelings or emotions. This is even more difficult for a deaf young person who also has a learning difficulty.
We hope that this booklet will help deaf children with learning difficulties find a way to manage their feelings safely. It is in two parts due to the size of the document. To download it click on the links below.
Let us know what you thought of this publication through our online feedback form.
2010 research findings
Did you know that in 2010 the University of Manchester completed some research, funded by NDCS, into the experiences of services for families with a deaf child with additional complex needs?
First ever event for young people with Usher Syndrome
NDCS together in Partnership with Sense are holding an activity weekend for young people with Usher Syndrome (aged 11-19 years) there will be an opportunity to meet other young people with Usher Syndrome, find out about support available from NDCS and Sense, and most of all, have a lot of fun!
The event will be held at the Pioneer Centre in Kidderminster from Friday 4th to Sunday 6th October 2013. Full details can be found
Papworth Trust – Kerry Farm
Papworth Trust are a charity who support disabled people of all ages. They have recently developed a short break/holiday scheme for disabled children and adults in the Welsh countryside which families can enjoy together.
Kerry Farm provides accessible accommodation, a wide range of activities and the support you need to enjoy a holiday together, all free of charge! Applications for 2014 will be accepted from October 2013, so to see if you are eligible to apply, or just to find out more about Papworth Trust and Kerry Farm, please visit http://www.papworth.org.uk/kerryfarm/
Technology Can Help!
We provide information about products and technology that may help children with additional needs.
We also have a range of products that you and your child can try out for free in your own home to help you decide whether or not they might be suitable . Check out our technology pages where you will also find information about the new iPad APPlicator which is a switch interface making access to apps easier for those with hand/eye coordination difficulties.
Transition Information Network
The transition to adulthood can be very daunting for everyone. If your child has additional needs, this can be a very anxious time for you all.
The Transition Network has some useful information and resources and is worth checking out. For further information visit the website:
Do you want to find out more about what key working is all about? The National Children’s Bureau has written a guide to help parents and professionals know more. For further information, please visit the website:
BSL Interpreted performance of ‘The Boy who sat on the Dragon Throne’
BSL Interpreted performance of ‘The Boy who sat on the Dragon Throne’
Saturday 5th October 2013
11am at the Victoria and Albert Museum, London
Sense are please to be able to offer families the opportunity to attend a performance of The Boy who sat on the Dragon Throne.
The performance will be BSL interpreted, and there will be materials, puppets, fans and drums that can be explored by the audience.
Following the performance there will be family day events where families can spend time in the garden, or in the Theatre and Performance Galleries where guests can join in handling
sessions, exploring costumes and mini-set model boxes and materials related to theatre design.
A large lunch room will be available (please provide your own lunch, café facilities available) and families will have a chance to meet each other, and spend some time in a fully accessible and supported environment teamed by staff from the V & A and Sense’s Children’s Specialist Services.
To apply for tickets please contact Jackie.Palmer@Sense.org.uk
or 07943 717109. Places are limited so will be awarded on a first come first served basis